Cee has seen so many doctors that we joke about playing “Doctor Bingo.” We could fill in a bingo card with all the different specialty doctors we’ve seen. Today we met with teams from Orthopedic Surgery, Rheumatology, Hematology, and Infectious Disease. They’re concerned that the swelling in Cee’s ankle may be an infection, so tomorrow they plan to do an MRI and an aspiration (sucking out the fluid) of the ankle. She would be sedated again.
Cee still has a very difficult time letting the doctors poke and prod like they need to. They’ve been very good at dealing with her, though. Elle is back home in Iowa while we’re at Mayo, so we’re feeling sad. Cee’s ankle and hip are still painful; hopefully that new medicine (Naproxen) really does help her feel better. It took probably 10 minutes to get her to drink the 1 teaspoon of it, so it better be great.
Cee just isn’t herself. She had the option to visit with the music therapist who played the guitar. But she wasn’t interested. I brought her the materials for a butterfly craft, but she wasn’t interested in that, either. She did play with the hospital’s iPad for awhile, but not long. The kids have access to so many neat things to help them pass the time. I want to say to Cee, “Take advantage of all these cool things, because eventually we’re going to be back at boring old home.” She did have a visit from the therapy dog yesterday, and this past weekend she had fun with David’s parents.
Cee has a new stuffed bunny that is very special to her. She keeps it close all the time. What’s his name, you ask? AHHHHHHHHHHHHHHHHHHHHHHH! No, that’s not his name, but that’s what Cee says whenever anyone asks. He doesn’t have a name, and Cee hates when people ask about it. She doesn’t understand that they’re being polite, and responds in a very impolite way. We’ll have to talk about that…
We wait for answers. Just like we’ve spent the last three months waiting. It’s nothing new, but that doesn’t make it any easier.
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