We’re in this magical wonderland where Cee is feeling well. She has her shots and her infusions and her blood draws and her doctor appointments– but she takes it all in stride. Even with over half her life spent fighting, she’s still able to be happy. Cee is a superhero in every sense of the […]
Cee’s rheumatologist advised that she get an MRI every six months in order to monitor the activity in her hips. (In case you missed her last MRI results from this spring, here’s the gist.) l can’t remember if that makes Wednesday her fifth or sixth MRI. David called from the hospital at about the time […]
A Mulan Unit Study (The Cincinnati scoop is down below, in case you want to skip the cheerful toddler pics.) This afternoon I noticed that Bea was sporting lavender eye shadow, which is particularly noteworthy because she is only a year and a half, and I don’t own any eye shadow. Putting two and […]
If the fifty degree difference between Cincinnati and home wasn’t enough to jerk us back to reality, the giant piles of laundry from the suitcase was. We are home. “How did it go?” our dear friends and family will ask. “Did you find any answers?” Those are tough questions. The short version: It went well. […]
We fly out early Sunday morning. I’ve done my best to be sing-song-y cheerful to Cee about it. The food we’ll eat (chili fo’ sure!). The places we’ll go (the 2nd oldest zoo in the country!). The amount of books she’ll be able to read (a whole carry-on dedicated to books!). The way Cee will […]
I have a weird approach to life’s obstacles. I think about the best thing that could happen in any situation, and then also the worst case scenario. Somehow it’s comforting to know that however things actually unfold, it will be somewhere on the spectrum of things I’ve already considered. Maybe I could call it the Outcome […]
Today we did another up-and-back to Mayo for Cee. That makes two trips in eight days. We returned home with more questions than answers and an MRI to get scheduled. David and I are exhausted in every sense of the word. It’s hard. It’s really hard. Given all this, when I read a […]
Participants in “Write 31 Days” pledge to write for 30 minutes on a single topic every day in October. My topic? Happiness. After a talk between Cee, David, and myself, today we decided to get Cee’s wheelchair out of its cobwebby corner in the garage. Cee’s pain has been slowly crescendo-ing. First the limp was a […]
Participants in “Write 31 Days” pledge to write for 30 minutes on a single topic every day in October. My topic? Happiness. Today Cee passed her plate to Elle and asked her to mash up her sweet potatoes at dinner. Confused as to why she didn’t do it herself, I asked if her wrists hurt. […]
Participants in “Write 31 Days” pledge to write for 30 minutes on a single topic every day in October. Yesterday I chose a topic— Happiness. Now I have to explore it. At the time it seemed like a great idea. Now it seems more like a joke. Cee’s hip started hurting a little. This morning. […]