pain

Cee complained that her knees hurt in the bathtub today.  I didn’t think anything of it, but later she wouldn’t walk down the stairs.  She wanted to be carried.  Cee mentioned pain in her knees several other times.  This is the first time since we’ve been home from Mayo that she’s had pain in a specific […]

When people ask how Cee is doing, the easiest response is that she has good days and bad days.  Really that’s been our go-to answer all along.  But the definition of “good days” and “bad days” has changed a lot over the past month. Before diagnosis:  A typical good day was when Cee would be able to […]

December Cee

Whenever Cee throws a fit in front of doctors or other people, I’ve been wishing they could meet December Cee —  Cee before she was sick.  December Cee answered questions politely and loved to tell people how butterflies use their proboscis to drain nectar from flowers.  She smiled at strangers and told terrible knock knock jokes.  (Knock, knock.  […]