Our next focus will be Cee’s stress level.  The nutritionist said that stress (anything that causes increased adrenaline) taxes the adrenal glands and messes up the hormones.  With arthritis, Cee’s immune system mistakenly thinks there’s something bad going on that needs to be attacked.  When she gets a shot of adrenaline, that makes the problem with her immune […]

Life is so much better than it was a couple months ago.  It’s been so nice that I’ve been lulled into a false sense of security with Cee’s health.  We’re dealing with a flare up today that has brought me back to reality.  And panic. These things have been hard today: *taking medicine *eating anything *dressing […]

David and I have met with some less-than-helpful criticism for pursuing Cee’s diet shift.  Here are some reasons we decided to pursue this diet change: -All in all, it seems to make sense.  “Eat more vegetables, avoid sugar.”   This isn’t exactly revolutionary in the diet world.  Sure it’s no fun, but at the very worst Cee won’t […]

Last night after supper, the girls were off playing, and David came into the living room where I was.  He looked amused. David:  Oh, I forgot to tell you that I caught Elle in the bathroom frosting cupcakes. Me:  (confused) What?!…Oh…the handsoap.  Was that her frosting? David:  Yep. Me:  What was she using as a cupcake? David: […]

Cee went to church dressed like a gypsy yesterday.  With all the changes she’s having to put up with, I didn’t push it. My sister picked up a bunch of dresses at a garage sale.  Most of them are everyday play dresses.  Cee chose one to wear for church.  It was  floor-length, spaghetti strapped, and as […]


On Friday we drove up with the kids to Rochester for Cee’s first followup appointment with our rheumatologist. Cee’s pain level is much lower than it has been, but she still has migrating joint pain.  It lasts in a certain joint for 2 days or so before moving to another joint.  She does have a rash that […]


Elle had a stomach bug all day today, so I made friends with Mr. Clorox Wipes.  It was an interesting switch in the dynamics of the house to have Cee doing okay, but Elle sick.  I think it was good for the girls to see that the grass really isn’t greener on the other side.  Hopefully the lesson […]

Back before Mayo we went to see a pediatric hematologist.  I hadn’t ever been to that clinic before, so I made sure we got there early.  Cee and I wandered around a little, found where we were supposed to be, and then went to the bathroom.  Poor Cee!  She was sitting on the potty, but […]

Cee complained that her knees hurt in the bathtub today.  I didn’t think anything of it, but later she wouldn’t walk down the stairs.  She wanted to be carried.  Cee mentioned pain in her knees several other times.  This is the first time since we’ve been home from Mayo that she’s had pain in a specific […]

When people ask how Cee is doing, the easiest response is that she has good days and bad days.  Really that’s been our go-to answer all along.  But the definition of “good days” and “bad days” has changed a lot over the past month. Before diagnosis:  A typical good day was when Cee would be able to […]