Our Journey with SOJIA

  Cee has been sick since January ’13.  She went from being a completely fine four-year-old to waking up one Sunday unable to walk.  After three months of extensive testing and excruciating pain, she was diagnosed with Systemic Onset Juvenile Idiopathic Arthritis. SOJIA is a chronic illness with ups and downs. This isn’t your grandma’s arthritis. […]

Broccoli for Haters

  Generally, I do not like vegetables– broccoli included.  Well, I used to be a hater until this recipe converted me.  We make the following recipe every week, if not a couple times per week.  It’s a tasty and affordable side that can be thown together with little fuss. Frugal note:  I like to stock up […]

Momsolation

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Carrots recently posted all the thoughts on the tough job of being a mother in today’s world.  Here’s a thought that’s going to stay with me:   Maybe we are not super heroes. Maybe we are not robots. Maybe just maybe we are human women who need good food, exercise, occasional silence, friendship, a night […]

My Grandbunnies

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I asked Elle to describe a drawing she was working on diligently. Elle:  (proudly) These are my kids. Me: Oh!  How nice.  How many kids do you have? Elle:  Seven. Me:  What are their names? Elle:  Flopsy, Mopsy, Cottontail…(big pause)…Mrs. Rabbit…Lucy… (she trails off, unable to name the remaining two)   Oh dear.  I think […]

First Communion

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Today was a big day, because Cee received her First Communion!  It was a happy, happy day. Cee looked beautiful, and she was so excited to receive Jesus. Whew.  We didn’t know if we would make it to this point.  There were times we honest-to-goodness didn’t know if Cee would make it to ANY of the milestones we […]

Jennifer Garner Plays Me

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  Have you seen the previews for the movie “Miracles from Heaven?”  I saw one, and it looks like Jennifer Garner plays me in it.  Okay, she actually plays a woman named Christy Beam, but there are some similarities in our lives: a daughter’s terrifying, sudden-onset illness.  A million questions.  No answers.  A crisis of faith.  Hope. […]

Diligence

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Moe has been diagnosed with hand, foot, and mouth disease. It’s a viral, common, childhood illness, and there’s not anything we can do but ride out the next week or so. “Diligent handwashing” is the only recommendation.  Though I’m not sure that my hands, dry and chapped from the perpetual washing, will make any difference.  As I […]

2016 Winter Update

We just returned from our most recent up and back trip to Mayo.  They’re more cost and time effective than staying over night, but man – – those up and backs are exhausting.  Nothing like sitting for 7 hours to take it out of you. Cee’s arthritis is quieting down.  She’s gotten rid of almost […]

Holding Steady

We’re holding steady.  Cee’s mild pain has stayed about the same.  Sometimes her left hip hurts.  Sometimes it’s her right hip.  Sometimes it’s neither, and sometimes it’s both.  Overall it’s not impacting things too much.  We watch and wait.   “Holding steady” might just be a euphemism for “trying not to fall apart.” Cee has been on oral steroids for […]

The Worst Book Ever:  A Review

Cee asked me a few times throughout the day if it looked like she was limping.  It did, but I gave some noncommittal answer.  I asked if anything hurt, and she said that it feels the way it does before a flare.  Primarily it’s her hip. I knew that something was coming, but I didn’t really […]