David and I have met with some less-than-helpful criticism for pursuing Cee’s diet shift. Here are some reasons we decided to pursue this diet change:
-All in all, it seems to make sense. “Eat more vegetables, avoid sugar.” This isn’t exactly revolutionary in the diet world. Sure it’s no fun, but at the very worst Cee won’t get sicker from eating this way. So far she’s had more protein and vegetables than she has in months. We think that has already been beneficial.
-The side affects of the diet for Cee have all been positive. She looks better. Her energy is higher. The only downside is all the behind the scenes planning for David and me. We’ve had to skip events where food is served. We’ve had to eat all the leftover squash/beet fritters because no one else wanted them. (Not so bad with diet-illegal ketchup.) But at this point all that matters is making Cee better.
-We have nothing to lose. It’s possible that we’ll be the one case that doesn’t respond to the diet. It’s possible that all this special food we’re trying won’t help. So what? It’s still a whole lot easier than daily injections are going to be. At least this way we can say we’ve given it our all if that happens anyway.
(***Update from 2016: We gave it our all, and it still didn’t prevent the medication changes. We still think it’s worth it to continue eating lots of vegetables and no sugar, though, for the reasons mentioned above.)