We’re holding steady. Cee’s mild pain has stayed about the same. Sometimes her left hip hurts. Sometimes it’s her right hip. Sometimes it’s neither, and sometimes it’s both. Overall it’s not impacting things too much. We watch and wait. “Holding steady” might just be a euphemism for “trying not to fall apart.”
Cee has been on oral steroids for about 10 months this year. Starting tomorrow, she’ll be off of them. As far as growing goes, she’s slowed down this year. It’s back to looking like she and Lucy are about the same height, even though there’s about 2 years age difference. The last time she stopped steroids, she grew like a weed! We hope this year will be the same. We hope that her body will be able to catch up before the steroids start again.
We go back to Rochester in January. It’s our goal to hold steady until then.