We’ve been at Mayo since Friday. Cee was unimpressed with the ambulance ride and having to get an IV again…
St. Mary’s feels a lot like Avera in atmosphere, only bigger. There’s definitely the same emphasis on quality of care and less emphasis on the flashy unimportant things that we’ve seen other hospitals value. And the team approach that the doctors have is very effective.
Since Friday, Cee has presented almost all her symptoms. While we’re sad she has so much discomfort, we’re glad the doctors can observe things like random swelling, migrating joint pain, fevers that come and go, and so on. They’ve taken some blood and started to strategically look at what could be causing Cee’s illness.
At this point, leukemia is at the top of their list for what could be causing it. Her oncologist said that it isn’t very likely given Cee’s blood work. She’s only seen 2 cases like this in 13 years. But it’s still possible. Cee will be having a bone marrow biopsy Monday morning so we’ll know for sure. We’re doing our best not to be terrified and have kept from googling awful things like “childhood leukemia survival rate.”
On a happier note, Cee has been eating more the past few days. Patients can order whatever meals they want, and Cee has chosen a lot of bacon. Bacon for breakfast, bacon on her sandwiches–it’s funny since she’s a 4 year old girl, but whatever gets those calories in.