Cee complained that her knees hurt in the bathtub today. I didn’t think anything of it, but later she wouldn’t walk down the stairs. She wanted to be carried. Cee mentioned pain in her knees several other times. This is the first time since we’ve been home from Mayo that she’s had pain in a specific joint.
When her arthritis is bothering her, everything is a big deal. Combing her hair, putting on shoes, getting in the car–almost everything is a source of tears. At least her full-out fits are few and far between.
We had my sister’s graduation tonight. It didn’t go quite as I had planned because Cee mostly just wanted to be held. But everyone was very understanding. It’s such a relief to be in a place where we’re not being constantly judged.
The girls have been in bed for a few hours, and already Cee has woken up crying twice. That hasn’t happened in awhile. I know we’re going to have good days and bad days, but it’s still hard when a baddish day happens. I have to keep telling myself that it will pass and hope that it actually will.