We’re holding steady. Cee’s mild pain has stayed about the same. Sometimes her left hip hurts. Sometimes it’s her right hip. Sometimes it’s neither, and sometimes it’s both. Overall it’s not impacting things too much. We watch and wait. “Holding steady” might just be a euphemism for “trying not to fall apart.” Cee has been on oral steroids for […]
Cee asked me a few times throughout the day if it looked like she was limping. It did, but I gave some noncommittal answer. I asked if anything hurt, and she said that it feels the way it does before a flare. Primarily it’s her hip. I knew that something was coming, but I didn’t really […]
Cee is at the hospital with David getting her most recent infusion. She still has that lingering cough, but the rheumatologist said to go ahead with the infusion as scheduled. So we did. We can’t risk putting it off indefinitely because of one isolated symptom. Infusions have become pretty routine, but the cough throws a wrench […]